Caregivers and families

Quick Fact

There are many causes of bronchiectasis, but about 40% of cases the cause is unknown. This is called “idiopathic bronchiectasis.”
Source: American Lung Association


BE affects more than just the patient. It can impact the daily routines and emotional well-being of families and caregivers. Since caregiving can be demanding, it’s important to maintain your own health and well-being by taking breaks, asking for help when needed, staying physically active, managing stress, and seeking support. NTM Info & Research and Bronchiectasis Info & Research maintain an extensive support group network and hosts a secure online discussion platform, NTM/BE Connect, for patients and caregivers. You can find information at 1251986.us8.myftpupload.com/ and ntminfo.org. Other online resources for caregivers include the National Alliance for Caregiving (caregiving.org) and the Family Caregiver Alliance (caregiver.org).

Helpful tips for caregivers:

• Maintain up-to-date flu, pneumonia, RSV, and COVID, and other recommended vaccinations.
• Wash your hands with soap and water for 20 seconds; use hand sanitizer if soap and water are not available.
• Avoid close contact with people who have symptoms of illness.
• Develop a support system for yourself with family and friends.
• Join a support group to be reminded you are not alone in providing care.
• Schedule time for yourself.