Caregivers and families

Quick Fact

People with bronchiectasis lead relatively normal lives, though they may have periodic flare-ups.
Source: American Lung Association

BE affects more than just the patient. It can impact the daily routines and emotional well-being of families and caregivers. Since caregiving can be demanding, it’s important to maintain your own health and well-being by taking breaks, asking for help when needed, staying physically active, managing stress, and seeking support.

NTM Info & Research and Bronchiectasis Info & Research maintain an extensive support group network and hosts a secure online discussion platform, NTM/BE Connect, for patients and caregivers.

You can find information at bronchiectasisinfo.org and ntminfo.org. Other online resources for caregivers include the National Alliance for Caregiving (caregiving.org) and the Family Caregiver Alliance (caregiver.org).

Helpful tips for caregivers:
• Maintain up-to-date flu, pneumonia, RSV, and COVID, and other recommended vaccinations.
• Wash your hands with soap and water for 20 seconds; use hand sanitizer if soap and water are not available.
• Avoid close contact with people who have symptoms of illness.
• Develop a support system for yourself with family and friends.
• Join a support group to be reminded you are not alone in providing care.
• Schedule time for yourself.